I have considered for a while now that I needed to write about how this happened and how I, as the mother and primary care-giver has had to learn to adapt or get left in the dust of doubt and all the other many insecurities that I have had about this whole situation.

Well to get right into it, back in March we (my husband and I) went down to salt lake city to the Children’s hospital there to have an elective surgery preformed on our youngest son, Rhonin; who was just then 18 months old and 21 pounds. We went there to do a tonsillectomy and adenoidectomy which is just some fancy words for taking out of his adenoids and tonsils. An overnight stay at most because of his age not anything else. While doing the surgery they called and asked if he could also do a laryngoscopy, a scope of the back of his throat and down into his trachea. We said yes and during this they learned that my little Rhonin has the airway size of a 32 week pre-mature baby. To give us an even better understanding of the size he showed us a coffee stirrer, “This small” his Doctor said lifting the straw. As my eyes latched on to that little coffee stirrer my heart sank and I knew that we were in for a world of trouble. It was at that time that the Doctor recommended that we think about doing reconstructive surgery at some point in Rhonin’s early years. Besides having a small airway he also has a skeletal disorder called Skeletal Dysplasia, which is dwarfism at its core. So my Rhonin will never be super tall.

I was then told that I could go see my little man, my husband Jarod staying in the waiting room with our eldest son Liam. I walked into the PACU and got tense because there was quite I few kids crying as they awoken from surgery. I rounded the bend and saw that Rhonin too, was one of the many children crying. His voice was very rough sounding and by the time they gave him to me he was so worked up that I don’t think he even noticed that I was the one holding him. I silently let my tears of utter despair slide down my face as I tried so hard to not let my emotions come though. I have read somewhere that children, like dogs and horses can sense fear or upset. So I was trying to calm him and not let on that I too was crying. And sadly, he couldn’t even open his eyes and see that it was me…his eyes were too swollen to open.

To make a very long part of the story short, he started having trouble breathing and the doctors were getting worried that he was working so very hard just to breathe. Now I am very much a hands on mom, and I wasn’t going to let anyone do anything to my Rhonin without clear understanding why and if there was any other way. But I learned that sometimes…And I mean sometimes, we need go with what the professionals suggest.

Towards midnight Rhonin was rushed to the OR again. At this time the Doctors wanted to re intubated him and put him on a ventilator to give his poor little body a break from working so very hard. Seeing him struggle like that was so hard. Something that all of us take of granted sometimes. Rhonin returned to sedation and intubated for a week, the swelling went down a little once and they tried to get the tube out only to have to put it back in again. Did you know that even sedated, children can cry. How scared he much have been, and all I could do was hold his hand and kiss his foot, telling him that everything was going to be alright in the end. It broke my heart seeing him cry the first time and every time there after.

It was at that time that his Doctor recommended that we really needed to start preparing ourselves for the possibility that Rhonin would need a Tracheostomy to even survive until at some point Rhonin could then have that reconstructive surgery we had talked about.

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(Tracheotomy  is a surgical  procedure which consists of making an incision on the anterior aspect of the neck and opening a direct airway through an incision in the trachea (windpipe). The resulting stoma (hole), or tracheostomy, can serve independently as an airway or as a site for a tracheostomy tube to be inserted; this tube allows a person to breathe without the use of his or her nose or mouth. Both surgical and percutaneous techniques are widely used in current surgical practice. It is among the oldest described procedures.) —- direct Quote from Wikipedia

Traqueostomia220px-Tracheostomy_tube The one on the right is a cuffed trach tube and various equipment

We did go with a Tracheostomy after they had tried absolutely everything else. We could tell right away that it was the right decision for our Rhonin. After the Tracheostomy, we had a trach care class to attend adding 5 more days to our stay.

During his stay at Primary Children’s Hospital Rhonin thought about ending his pain by not breathing…4 times! I have never cried and prayed so hard in my life. I have nothing but gratitude in my heart for all the wonderful people and family that supported us while we were down in Salt lake for 2 weeks, 13 days more than planned on.

sad  trach1

Just a day or so after getting his Trach, still sedated.

 

20140327_124639-MIXThe day they let the sedation wear off. 🙂

20140328_15395220140328_15393620140328_153932 The day they let me hold him again. One week was way too long to not hold your baby!

 

smile trach The day they let us out of the critical care floor and on to the normal recovery floor. Someone was very happy!

rhonin A few days after getting home.

rhonin and Liam   2 weeks after coming home. He was all smiles again. And hugging on his brother.

outside Now-a-days he is like any other little boy, he loves to play outside. That is what he is doing here. He was about to go down a slide.

rhonin1 This is now 6/16/14. And of course walking around getting in to all sorts of stuff he isn’t suppose too all over again.

On a side note after we got out of the Hospital he had lost 5 pounds and couldn’t walk. His muscles were to weak and trying to get his appetite back is still a struggle. I won’t say that living with a little kid with a trach is easy. It’s not. I can’t go on a date with my husband unless I have a trained person to take care of Rhonin in case of an emergence. I don’t get a full nights rest…like ever, not kidding, I just had my own tonsils yanked out and even on drugs I was able to wake up and still take care Rhonin’s needs. Rhonin likes to get all tangled up in his humidity cord and it pulls the sleep mask off his Trach and I have to constantly get up and reposition him and the hose. He needs the humidity so that his lungs don’t get all dried out and get cracked and start bleeding.

We now have a date for his reconstructive surgery. July 14th, again, sedated for a week then a few days of awake recovery and then we can come home. Trach free. I will fully admit to being more than a little freaked out about him going back to the hospital for this surgery. I keep telling myself that this time it’ll be less scary because it’ll be planned. So different. This time Rhonin won’t have a cold that will complicate matters. If you pray, please send a plead on Rhonin’s behalf.

So that is a little more of some of the craziness that I have dealt with recently.

 

 

 

 

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I can’t say how much I love this recipe. And it only has 3 net carbs in it.

Low carb Stromboli

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Crust:

4 tbsp. almond flour

3-4 tbsp. coconut flour (add the 4th based on how wet the crust looks and feels) If you add the last tablespoon extend the cooking time to 15-20 minutes.

4 tbsp. melted butter

1 1/4 cups mozzarella shredded

1/2 tsp. fennel seed

1 tsp. red pepper flakes (optional)

1/8 tsp. garlic powder

1 egg

Filling:

1/2 cup shredded mozzarella

10-15 slices pepperoni

and anything else that sounds good.

  1. Preheat oven to 400 degrees
  2. melt butter in microwave and set aside
  3. combine spices with the cheese and melt in  microwave 2 minutes at 30% power for 1200 watts
  4. Add almond flour, coconut flour, melted butter, egg, in to the melted cheese spices mixture.
  5. microwave the dough for 10-15 seconds
  6. and then again right before you roll the dough out. Another 10 seconds.
  7. form a rectangle of square by rolling the dough out and shaping it.
  8. cut sides to get even lengths.
  9. use pizza cutter to make strips down the sides – 1/3 of the way in to leave room
  10. add various fillings – fold strips over
  11. fold up dough on the ends to close
  12. bake at 400 degrees for 15-20 minutes

 

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Nutrition information:

5 servings,

per serving – 300 calories, 26 g of fat, 13 g protein, 5 g carbs, 2 g fiber, so only 3 net carbs! 

So this was a very easy meal to make and very filling. Very satisfying. So not only is this a great low carb meal but it also fits into P3 of the HCG diet quite easily.



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SO MUCH HAS HAPPENED! yes so much that it needed to be stated in caps. I found out in January that my Mother has Breast Cancer! So In order to help my parents my family moved in to a one bedroom trailer out at my parents place. You see my Mom and I co-run a business. We breed European Boxers and sell them as everything from pets to service dogs. www.lotsaboxers.com

jett this is one of the puppies we have for sale now. His name is Jett and he is a super sweetheart. To find more info on him and his siblings, go to the page titled puppies, then pick River and Dante’s litter. www.lotsaboxers.com

So while my mom was undergoing Chemo and all the nasty side effects from her treatment. We are living in a dinky little trailer and trying to sell our beautiful 3 bedroom house in town. Trying to get everything we might need to get by from a big 3 bedroom house to a little trailer is frustrating to say the least.

Then we went to Primary children’s hospital in Salt lake in March for my youngest to have his tonsils and adenoids removed. An overnight (One night Stay) or so it was supposed to be. To make a very long and painful story short after having to be sedated for a week and having to have a tracheotomy done so he could even breathe we were finally allowed to go home and try to adjust to life with a 18 month red-head that was angry all the time that he couldn’t make a sound. Well life was very stressful to say the least. Not much sleep for me because I was worried that he would somehow block his Trach tube with something. But over time it has gotten better and I have grown accustom to reading his body language to find out what he needs and wants. We are trying to get to the point were he can have reconstructive surgery at the end of summer this year. OR the best thing in my mind would be dilating his trachea so that we could wait till he is older to do the surgery. We have already done one dilation and it has worked really well. We will do another and then look at our options again. So that is going on.

My weight-loss goals are still in the works. I restarted the HCG back in February and was very successful, I lost 29 pounds and was able to stabilize at that last dose weight. Then in April I started Round 2 and lost 17 pounds. Now I am working on stabilizing for that round. I will take a break in June (because I am having my tonsils removed…oh goody! NOT!) And start my 3rd round in July.

To top everything off nicely we are trying to sell our house and get out of debt. Help my parents with daily living and raise and sell these wonderful companions and service dogs. For more information: www.lotsaboxers.com

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Well life is still crazy and I have sick children off and on again. But I am tired of putting off some of what I consider to be important needs because of life’s craziness. If I continue to do that then I will never meet my goals. To that end I have been able to stop the medication that I felt was keeping me from losing weight, and my youngest has also finally weaned from nursing. YAY!

therefore I will be starting the HCG diet on the 1st of February and I am not going to stop until I reach my goal. I am estimating that I will need to do around 3-4 rounds. 30 days each round with a 3 week break between.  I’m excited to start but again I am nervous, there is just so much going on in February. My son is having his tonsils and adenoids removed. We are moving and selling our house. We are going to live in a trailer until we pay off some debt and our new house is built. We just have so much going on, and the crazy thing is….I want to do more. I want to be more. I want to run for 5 mins and not be exhausted. My mom always said that I can do anything that I put my mind too. And I believe her. Thanks Mom!

So here’s to a new year, a new me, a new list of goals to complete. Cheers!

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Well so much has happened since the last time I posted, My sons got really sick and my youngest had to be admitted to the hospital because he couldn’t breathe. And this is after we went to the ER with him the night before where he had received a breathing treatment. Scared me to death. He was turning blue and gasping for air. Well after almost 3 days in the hospital and almost 2 days of breathing treatments he is much better.

Then I got really sick myself with a cold. But I slowly recovered. Then my Grandmother on my mom’s side passed away. I had a very hard time. I was as close as I could be to her. And I loved her. Just the other day I was digging in my closet for a sweater and found the gift that I bought for her for Christmas, and I had myself a good cry.    I miss you Grandma.

Weight-loss update: I am trying to wean off of some medication that has been known to make weight-loss very hard. I am of course doing this with Doctor supervision. I have done pretty well with keeping off what I have loss with a pound to 2 exception. Weaning my son has back-slid a little because of being really sick, he stopped eating and the only thing he would do was nursing as his breathing allowed. My husband has done really well. He has lost almost 43 pounds since starting. So yay for my hubby!  I will see if he will let me post his before and after pictures, it is amazing the difference between them.

I am glad for him yet sad that I couldn’t continue myself. I will update again soon. Any questions/comments?

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So today was rough, and not in the way most are thinking. I had no cravings, wasn’t dying of hunger. No I was dizzy and light-headed, felt sick to my stomach. Even after eating I was like this. SO in desperation I turned to the HCG forums and websites, searching for a reason why this was happening. Well one thing I didn’t count on when I was planning for this diet was that I  would still be nursing my youngest child, and according to the forums doing the diet and breastfeeding is a bad combination. Causing shakes, dizziness, stomach cramps, light-headedness, shortness of breath.

Thus my conclusion is that I must wean my little man (he is a year old) before my group does its next round on October 19th is when we start again. So I am going to move into P3 and hope that I can keep the weight I have loss off.

Today I ate: 1 apple, 1 cup cottage cheese, taco salad yum!

c4ef1731762308929af0e25977fb702ef0c60a32_r380_255 apples1

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So you know that point in any diet that you just want so very badly to eat something… anything other than what you is allowed, well today is that day. I even found a piece of chocolate and even stuck it in my mouth, then my motto ran…well more like screamed; through my mind. “NOTHING TASTES AS GOOD AS SKINNY FEELS! And I am so proud of my self, because I spit it out, without chewing I might add. YAY me!! This is where I have fought my toughest opponent…Me.  Plato said: The first and the best victory is to conquer self. Amen brother! Well aside from my low point today I did have a good loss 1.6 pounds! yay me!  Lets see if I can keep it up!

Today food was: 1 Apple, 3.5 oz. steak with half a cucumber with a pickle, then 3.5 oz. chicken with steamed broccoli YUM!

images123imagesCAO39ZK9 imagesCA27CGW0 cucumber

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Today was a good day, I didn’t lose anything, but I am ok with reshaping. I can feel it. The changing in my body. So yahoo!   I must admit that I am getting tired of the food list. I would kill for a stir-fry with more than one veggie in it. Another thing that I would dearly love is a PB&J sandwich. I have made them for my kiddos and man they smell so good! lol

 

On other things, it flooded again.

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Today I ate: 1 Apple, 4 oz. of shrimp and broccoli steamed, 3.5 oz. chicken with 5 oz. celery made into a soup with some chicken broth. Yummy!

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Well today is going well, I went down .4 pounds!! Wahoo! (and no I am not being sarcastic) I view any loss, and no gain a win-win for me.

LilySlim - (XPIz)

 

Today I ate: 1 Apple, 1 cup of fat-free cottage cheese with a half a cup strawberries, and a very yummy plate of chicken cabbage stir-fry. All an all a very good day.

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I would dearly love to hear from my readers, if you could spare a moment and send me word, I would really appreciate it.

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Today I am really tired, but I am sure that is from my teething 1-year-old. I loss .2 pounds Which is still a loss so I am good with that, I think it would have been more but I am short on sleep. A loss is a loss no matter how small. It is on days like this that I like to find a motivational quote, I liked this one.

Julius Erving: If you don’t do what’s best for your body, you’re the one who comes up on the short end.

Today I ate: 1 apple, 1 cup of fat-free cottage cheese and strawberries on top, and for dinner I had a wonderful taco salad. YUM!

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